Web Casts
Choose a topic of interest…
- Adapting the Home
- Aging With SCI
- Autonomic Dysreflexia
- Bladder Care
- Bone Health
- Bowel Care
- Cardiovascular Health
- Caregivers
- Emergency Preparedness
- General Webcast
- Home Modifications
- Living with SCI
- Medications
- Nutrition
- Osteoporosis
- Pain Management
- Pressure Sores
- Ramp Building
- Research & Recovery
- Respiratory Care
- Sexual Functioning
- Sexuality
- Skin Care
- Social Security Disability
- Spasticity
- Spinal Cord Injury
- Spinal Surgery
- Wellness
Caregivers
Personal Caregivers
Three individuals with quadriplegia share their experiences and tips for hiring, managing and (when necessary) firing personal caregivers. Following these presentations, a rehabilitation psychologist discusses maintaining personal boundaries with personal caregivers. Presented on April 8, 2008 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/caregivers.aspPersonal Assistance Services
By promoting research, training, technical assistance and dissemination about personal assistance services, the Center’s mission is to ensure that people with self-care limitations can find information that will help them live independently. Funding is provided by the National Institute on Disability and Rehabilitation Research, U.S. Department of Education, Office of Special Education and Rehabilitative Services.
www.pascenter.orgFamily Caregiver Alliance
Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, FCA now offers programs at national, state and local levels to support and sustain caregivers.
www.caregiver.orgRosalynn Carter Institute for Caregiving
The Rosalynn Carter Institute for Caregiving (RCI) was established in 1987 on the campus of Georgia Southwestern State University (GSW) in Americus, Georgia. The RCI was formed in honor of former First Lady Rosalynn Carter, an alumna of GSW, to enhance her long-standing commitments to human development and mental health.
www.rosalynncarter.org/Caregiver.com
Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Founded in 1995, we produce Today’s Caregiver magazine, the first national magazine dedicated to caregivers, the “Sharing Wisdom Caregivers Conferences”, and our web site, caregiver.com which includes topic specific newsletters, online discussion lists, back issue articles of Today’s… Read More »
caregiver.com
Children
New DVDs on Parenting Techniques and Adaptations
Through the Looking Glass announces the availability of three new DVDS on Parenting Techniques & Adaptations for parents with disabilities. Each DVD runs 40-45 minutes, showing adaptations, equipment and strategies for parents with particular functional limitations or disabilities
www.lookingglass.org/component/content/article/1-latest-news/143-new-dvds-on-parenting-techniques-and-adaptationsParents in Wheelchairs
Parents in wheelchairs – a personal account of a paraplegic Mum. I’m Ali Gibson. I suffered a spinal cord injury in 1996 at the age of 23 and am paralysed from the waist down. I met James in 2004 and we got married in 2007. Sarah was born in January 2008 and she’s an angel.
www.parentsinwheelchairs.com/Parents with Disabilities Online
We believe that the best source of knowledge on parenting is parents themselves. The same holds true for parents with disabilities, and our primary goal is to give parents an opportunity to share ideas and learn from each other. Much of the information on this site comes straight from the source–the parents with disabilities who… Read More »
www.disabledparents.net/Through the Looking Glass (TLG)
Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California…. Read More »
lookingglass.orgChildren’s Internet Resources
Spinal cord resources for children.
www.spinalcord.org/resources/index.php?link=C&list=16Resources for Kids
The interests of kids with disabilities are at the heart of numerous policies and programs set forth by nonprofit groups, resource centers and state and federal agencies. There are programs to ensure families have resources to live. There are programs that hope to make healthcare available. Laws have been written to guarantee that all kids,… Read More »
www.christopherreeve.org/site/c.mtKZKgMWKwG/b.4468351/k.B90E/Kids.htm#Kids Health
Information about health, behavior and development, birth through teens. Sections for parents, children and teenagers.
kidshealth.org
Employment
Jobs for People with Disabilities at GettingHired.com
Bridging the Gap Between Job Seekers with Disabilities & Employers Looking to Hire
GettingHired.comProAble.net
ProAble.net has a mission is to serve as a vital resource for people with disabilities to find jobs. Join a group to meet local professionals with disabilities in various industries. Members are encouraged to post career related information and events!
www.proable.netAOL Jobs – Articles & News
Articles highlighting ways to find jobs
jobs.aol.com/articlesTypeFocus Careers
Discover your personality type and what careers fit your natural strengths. TypeFocus Careers brings it all together in a program that helps high school – college/university students and One-Stop clients make good career choices and improve retention rates.
www.typefocus.comNational Business and Disability Council
The NBDC is the leading resource for employers seeking to integrate people with disabilities into the workplace and companies seeking to reach them in the consumer marketplace.
www.nbdc.comWork Incentives for Persons with Disabilities Under the Social Security and SSI Programs
This version of the publication, Work Incentives for Persons with Disabilities Under the Social Security and SSI Programs, is published through the National Assistive Technology (AT) Advocacy Project as part of its Funding of AT booklet series. Information about the AT Advocacy Project and the federal grant which supports it appears in the Publication Credits… Read More »
www.nls.org/wkboklet.htmOpportunity for Work and Learning
OWL partners within communities to educate and equip individuals with barriers to employment to reach their vocational goals
www.owlinc.netMedicaid Works
Medicaid Works is a program for people with disabilities who work. Under this program, workers with disabilities who earn less than 250 percent of the federal poverty level can pay a monthly premium to buy into the Medicaid program.
chfs.ky.gov/dms/Medicaid+Works.htmJobs.net
Job Search, Employment Resources and Career Advice
www.jobs.netJob Accommodation Network (JAN)
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability, and shows employers how to capitalize on the value and talent that people with disabilities… Read More »
askjan.orgGettingHired – Jobs for Disabled
Our portal has incorporated several unique free services designed to help people prepare for the work place and build their careers. Our social networking medium offers individuals a platform to connect with each other and career mentors.
www.gettinghired.com/Equal Employment Opportunity Commission
The U.S. Equal Employment Opportunity Commission (EEOC) is responsible for enforcing federal laws that make it illegal to discriminate against a job applicant or an employee because of the person’s race, color, religion, sex (including pregnancy), national origin, age (40 or older), disability or genetic information. It is also illegal to discriminate against a person… Read More »
www.eeoc.govDress for Success Louisville
Supplies suits/interview clothing and mentoring for women
www.dressforsuccess.org/affiliate.aspx?sisid=39&pageid=1DisaboomJobs
Ready to start your job search? You’ve come to the best place to check out jobs for people with disabilities. You can search for jobs without registering, but if you do register, you can do all sorts of cool (and useful!) things. Not only can employers find you more easily, but you can save the… Read More »
www.disaboomjobs.com/Disability.gov – Employment
People with disabilities are an often untapped source of skilled, innovative, and dedicated employees. This section of Disability.gov offers job seekers, employers, and employees practical information about finding a job, recruiting and hiring people with disabilities, and job accommodations. It also offers resources on starting a small business and laws and regulations that protect the… Read More »
www.disability.gov/employmentDepartment of Labor
The U.S. Department of Labor is charged with preparing the American workforce for new and better jobs. DOL is responsible for the administration and enforcement of over 180 federal statutes.
www.dol.gov/CREW Career Center
The following websites will provide you with some helpful information to assist you in your career exploration, preparation, and placement.
crew.cc/careerlinks.aspxCareer Opportunities for Students with Disabilities (COSD)
Career Opportunities for Students with Disabilities (COSD) is a unique and dynamic national professional association comprised of more than 600 colleges and universities and over 500 major national employers. COSD’s mission is to improve the employment rate of college students and recent graduates with disabilities on a national basis. COSD works with higher education institutions… Read More »
www.cosdonline.org/CollegeGrad.com
CollegeGrad.com endorses the education and occupation tool CareerXE from WorldWideLearn.com, a site that provides educational opportunities for those seeking online degrees or on campus career training.
www.collegegrad.com/Choices Navigator
Choices Navigator is a statewide program funded by Social Security and administered in the western half of Kentucky by the Center for Accessible Living in Louisville, Kentucky and Murray, Kentucky. The center will make available a Community Work Incentive Coordinator, a knowledgeable advocate, who will help you understand complex work incentive program requirements.
www.calky.org/ssa.htmCareer One Stop
Find career centers and employment service centers to help plan for your career.
www.servicelocator.org/Kentucky Office of Vocational Rehabilitation
The Kentucky Office of Vocational Rehabilitation assists Kentuckians with disabilities to achieve suitable employment and independence. The office employs approximately 140 rehabilitation counselors in over 50 offices covering all 120 counties in Kentucky.
ovr.ky.gov/
Education
Physical Therapy Aide
Guide to Becoming a Physical Therapy Aide. Search 160+ Physical Therapy Aide Degree Programs to find the Best Physical Therapy Aide School for You.
www.physicaltherapyaide.org/Master’s in Healthcare
The healthcare industry is huge, with about 595,800 establishments, according to The Bureau of Labor Statistics. These establishments vary greatly in terms of size, staffing patterns, and organizational structures. About 76% of healthcare establishments are offices of physicians, dentists, or other health practitioners, and although hospitals constitute only 1% of all healthcare establishments, they employ… Read More »
mastersinhealthcare.orgKentuckiana College Access Center (KCAC)
The Kentuckiana College Access Center (KCAC) is your RESOURCE for helping you plan and pay for college. KCAC is open to the community and our services are free! Our college counselors offer one-on-one guidance to help make getting into college as simple as possible. We’ll help you research schools, fill out your financial aid forms,… Read More »
www.kentuckianacollegeaccess.org/Knowledge & Training for Future Success
A quality education sets the foundation for future success and should be within reach of everyone. This section of Disability.gov connects students with disabilities, as well as parents and educators, to information about a variety of topics from early childhood education to post-college and beyond, including making the transition from high school to post-secondary education… Read More »
www.disability.gov/educationCanaan Community Development Corporation (CCDC)
Education and Employment services
ccdcky.org/#/programs/gedesl-programsAccess*Ability Resource Center
Disability Resource Center at Jefferson Community College, Louisville, KY
legacy.jefferson.kctcs.edu/administration/student_affairs/ARC/default.phpGrants for Students with Disabilities
Students with disabilities are advantaged when it comes to grants and scholarships. Since the IDEA made it illegal to segregate disabled students, there has been a concerted push to offer incentives for students with disabilities to pursue their educational and career goals.
www.collegescholarships.org/grants/disabilities.htmResources for Students with Disabilities
Paying for college is difficult at best, The Center has collected some resources we hope will assist parents of students with disabilities and the students themselves who are looking for college financial aid and or student financial aid. One of the best resources we have found is the Fastweb college Scholarship site which is listed… Read More »
www.icdri.org/Financial Aid/finaid.htm
Financial
Disspelling Myths About Life Insurance
Life insurance, like most insurances, is confusing and often complicated, even for those with financial backgrounds, to fully understand. Many people erroneously believe that life insurance is limited to people nearing retirement or parents with children. Life insurance is a good way to provide for those you leave behind, but it’s far from the only… Read More »
www.neptunesociety.com/cremation-planning-for-caregivers/dispelling-myths-about-life-insuranceFinancial Steps to Prepare for Disability
“Unfortunately, people with disabilities don’t have many good options for affordable healthcare coverage while waiting for Medicare eligibility” Financial Steps Everyone Needs to Know to Prepare for a Disability
www.disabled-world.com/disability/finances.phpFinancial Planning for Veterans
Many financial advisors choose to focus on one or demographic segments of the population from which they build their clientele. One important group that often gets overlooked is members of the U.S. military who retire or separate from service. In many cases, these service members have been targeted by predatory lenders and salespeople who often… Read More »
www.investopedia.com/articles/financial-advisors/011415/financial-planning-veterans.aspMulti-Purpose Community Action Agency, Inc.
Multipurpose Community Action Agency (MPCAA) provides a number of services to elderly or low income individuals in need. Covers Bullit, Shelby, and Spencer counties.
www.mpcaa.org/mpcaa/Project Warm
Project Warm is a non-profit organization that provides free weatherization education and services for low-income households in Louisville.
www.projectwarm.orgMedicare support Center Info
Medicare.gov – the Official U.S. Government Site for Medicare
www.medicare.govCenters for Medicare and Medicaid Services
US federal agency which administers Medicare, Medicaid, and the Children’s Health Insurance Program. Provides information for health professionals, regional governments, and consumers.
www.cms.govLouisvilleKY.gov – Emergency Assistance
The Temporary and Extended Emergency Financial Assistance program is funded by Metro Government.
www.louisvilleky.gov/HumanServices/EmergencyFinancialAssistance/Social Security Administration
The Social Security disability insurance program (sometimes referred to as SSDI) pays benefits to you and certain family members if you worked long enough and paid Social Security taxes.
www.ssa.gov/pgm/links_disability.htmPrescription Assistance
Pfizer invests heavily in research and development to discover new treatments that will alleviate suffering and give hope to patients around the world. But inventing medicines isn’t enough if the people who need them can’t get them. Pfizer believes that having a limited income should not limit access to medicines, so Pfizer is taking steps… Read More »
www.pfizer.com/health/financial_assistance_programs/patient_assistance_programs.jsp
Housing
How to Make a Bedroom Accessible for Disabilities
Your bedroom should be your oasis for rest and relaxation at the end of a long day. Even if you have to spend a lot of time in your bedroom due to your disability, it should be a comfortable place where you can relax and live in with ease. Modifying the home to accommodate for… Read More »
www.mattressadvisor.com/how-to-make-a-bedroom-accessible-for-disabilities/Nationwide Lifts
As America’s leader in home elevators, we understand your connection to your home and we realize the important role our products have in your lives. That’s why Nationwide Lifts is the only residential elevator company to offer its customers a large selection of products, the industry’s best warranty, 24/7 phone support and a network of… Read More »
www.home-elevator.net/Grants for Home Modification: 16 Resources for Homeowners with Disabilities
Every year, more Americans living with disabilities are able to call themselves homeowners. Thanks to support and legislation such as the Americans with Disabilities Act (ADA), having a home to call one’s own is now an achievable dream for more people than ever before. For many individuals, purchasing a home is only half the battle,… Read More »
www.homeadvisor.com/r/grants-for-home-modification/A Guide for Disabled Homebuyers
Having a home to call one’s own is a giant milestone millions of Americans strive to achieve. Becoming a homeowner brings with it a sense of pride and accomplishment, but the process of touring homes for sale and making an offer can be intimidating. This is especially true for those with physical or emotional disabilities… Read More »
www.redfin.com/blog/guide-for-disabled-home-buyersThe Kentucky Housing Corporation
The Kentucky Housing Corporation provides lower-than-market-rate home mortgages; home ownership education and counseling; rental assistance; and housing rehabilitation and repair programs.
www.kyhousing.orgNew Directions Housing Corporation
Repair Affair mobilizes community-wide resources and volunteers to support the housing repair needs of elderly and disabled homeowners of low income throughout Kentuckiana.
www.ndhc.orgIndependence Place of Kentucky
Independence Place, Inc. Consumer Service Division assist individuals with disabilities in locating accessible and affordable housing, education and training, legal and civil rights, communications, barrier removal, food and heating/cooling resources, home furnishings, transportation services, voter registration, Family Services, Rehab Technology Services, counseling services, and other services which assist the person with a disability to live… Read More »
www.independenceplaceky.orgNational Resource Center on Supportive Housing and Home Modification
This web site, a university-based and non-profit effort, is dedicated to promoting aging in place and independent living for persons of all ages and abilities. It offers training and education opportunities for professionals who wish to respond to the increasing demand for home modification services. It also serves as an information clearinghouse on home modification… Read More »
www.homemods.orgDisabled World
Disabled World – Disability housing and home loans For people with disabilities and those on low incomes finding a home loan to purchase your own home can be a daunting task. Owning your own home is considered a fundamental right by most people, a natural progression into the world of independent living.
www.disabled-world.com/disability/finance/american-home-loans.phpCenter for Accessible Living, Louisville KY
The Center for Accessible Living is an innovative leader in empowering all people to achieve their goal of independent living while involving the entire community.
www.calky.org/The Center for Universal Design
The Center for Universal Design (CUD) is a national information, technical assistance, and research center that evaluates, develops, and promotes accessible and universal design in housing, commercial and public facilities, outdoor environments, and products. Our mission is to improve environments and products through design innovation, research, education and design assistance.
www.ncsu.edu/www/ncsu/design/sod5/cud/The Cain Center for the Disabled, Inc.
The Cain Center for the Disabled is a private, non-profit organization, which promotes and provides accessible, affordable housing in Greater Louisville for persons with disabilities and their families. Independent Living Sites in Louisville, KY
caincenter.orgBarrier-Free Home
Our Wheelchair Accessible Real Estate Listings Barrier-Free Home is a “one-stop-shop” for barrier-free homes and apartments.
US Department of Housing & Urban Development
Info for People with Disabilities – HUD
www.hud.gov/offices/fheo/disabilities/pwd.cfmAccessible home information
Be Sure you are Getting/Building a Home that will Accommodate Life
www.axesshomes.com/VirtualCIL Directory of Independent Living Centers
VirtualCIL Directory of Independent Living Centers
www.virtualcil.net/cils/query-iandr.php?state=kyIndependent Living Research Utilization
ILRU, founded in 1975, has a long history of providing research, education and consultation in the areas of independent living, the Americans with Disabilities Act, home and community based services and health issues for people with disabilities.
www.ilru.org/
Publications
Wheel:Life
Wheel:Life is a global initiative that assists people in addressing the many questions and challenges that come with using a wheelchair. Wheel:Life resources help people: find quality health and medical resources, related research and news; explore educational and employment avenues; research the proper adaptive equipment, assistive technology, home modification and home medical equipment for their… Read More »
wheel-life.orgWheelin’ Sportsman
Wheelin’ Sportsmen NWTF provides people with disabilities the opportunity to participate in outdoor activities. Dedicated to the education and entertainment of these enthusiasts and their able-bodied outdoor partners. For more information, call (800) THE-NWTF.
www.wheelinsportsmen.orgMainstream Magazine
For over 25 years, MAINSTREAM has been advocating for disability rights. Produced by, for and about people with disabilities, MAINSTREAM covers news & current affairs, new products & technology, profiles of movers & shakers, education, employment, sexuality & relationships, housing, transportation, travel & recreation.
www.mainstream-mag.comdizABLED – Comic Strip
Enjoy the heart-warming adventures of Leeder O. Men, world famous disABLED athlete and spokes person!
www.dizabled.comDisability World
DisabilityWorld is a unique international online magazine (e-zine), dedicated to advancing an exchange of information and expertise about the international independent living movement of people with disabilities. Published by the World Institute on Disability (WID) since 2000 and available only online, DisabilityWorld features a wide variety of news reports, international studies and research, new projects,… Read More »
www.disabilityworld.orgRagged Edge Online
Web site with references to the disability rights movement
www.ragged-edge-mag.comPushin’ On Newsletter
On line newsletter, Pushin On, is published by the Spinal Cord Injury Information Network.
www.spinalcord.uab.edu/show.asp?durki=21396Disability Social History Project
The Disability History Project is a community history project and we welcome your participation. This is an opportunity for disabled people to reclaim our history and determine how we want to define ourselves and our struggles. People with disabilities have an exciting and rich history that should be shared with the world. Please email us… Read More »
www.disabilityhistory.orgABILITY Magazine
ABILITY Magazine is currently ranked 19th on the Top 50 Magazines in the World — and is the leading magazine covering Health, Disability and Human Potential. We are an award-winning publication, distributed by Time-Warner. For nearly 20 years, our mission has been to provide new insights into our individual levels of ability.
www.abilitymagazine.comParaplegic News Magazine
For more than 50 years, PN/Paraplegia News has been an important part of the nation’s disabled community. Readers who rely on us for the most comprehensive, engaging coverage of wheelchair living—from spinal-cord-injury research and car/van adaptations, to legislation that impacts people with disabilities and accessible travel, trust PN/Paraplegia News for its integrity and sound judgment.
www.pvamagazines.com/pnnews/Sports and Spokes Magazine
SPORTS ‘N SPOKES is a bimonthly publication produced by the Paralyzed Veterans of America. S’NS reports on competitive sports and recreation for wheelchair users. Since 1975, S’NS has been a leader in wheelchair sports coverage and currently goes to more than 43 countries worldwide. Our readers come from all walks of life all having one… Read More »
www.pvamagazines.com/sns/New Mobility Magazine
New Mobility encourages the integration of active-lifestyle wheelchair users into mainstream society, while simultaneously reflecting the vibrant world of disability-related arts, media, advocacy and philosophy.
www.newmobility.com
Sexuality
Sexual Health Network
The Sexual Health Network is dedicated to providing easy access to sexuality information, education, mutual support, counseling, therapy, healthcare, products and other resources for people with disabilities, illness, or natural changes throughout the lifecycle and those who love them or care for them.
sexualhealth.com/channel/view/disability-illness/My Pleasure- Sex & Disability Articles
My Pleasure- Sex & Disability Articles
www.mypleasure.com/education/sexed/disabilitylist.asp?aid=druDating4Disabled.com
Dating4Disabled.com is an online community which offers the opportunity for people with disabilities to share, connect and just be heard. Make friends, find romance, and share resources with people from all over the world. Dating4disabled.com welcomes disabled as well as able-bodied members on condition that they want to meet people with disabilities and are committed… Read More »
www.dating4disabled.comSexuality in Spinal Cord Injury
From the University of Miami Rehab Team is information for men and women about spinal cord injury and erections, ejaculation, orgasm, fertility, conception and childbirth.
calder.med.miami.edu/pointis/sexuality.htmlSexuality for Women
Research suggests that the main difference in sexual functioning between women with disabilities and nondisabled women can be accounted for by the difficulties women with disabilities experience in finding a romantic partner. Level of sexual desire is the same, but level of activity is less because significantly fewer women with disabilities have partners.
www.christopherreeve.org/site/c.mtKZKgMWKwG/b.4453433/k.F255/Sexuality_for_Women.htm?msource=gethelpSexuality for Men
Sexual function is a major concern of men with paralysis. Men wonder if they can “do it” or whether sexual pleasure is a thing of the past. They worry that they can no longer father children, that mates will find them unattractive, that partners will pack up and leave. It is true that, after disease… Read More »
www.christopherreeve.org/site/c.mtKZKgMWKwG/b.4453431/k.A0C5/Sexuality_for_Men.htm?msource=gethelpSexuality for Women with Spinal Cord Injury
Sexuality is an expression of one’s self as a woman or man. It is intimate in nature, which means it is personal and private. Sexuality is commonly expressed through physical and emotional closeness. Most people consider sexual activity as a means to express physical intimacy. However, physical intimacy is more than sexual intercourse. Holding hands,… Read More »
www.spinalcord.uab.edu/show.asp?durki=51275Sexual Function for Men with Spinal Cord Injury
Many men with spinal cord injury (SCI) experience changes in their sexual function and ability to biologically father children. In addition to these physical changes, most men also experience emotional issues that often affect their overall sexuality. It is very important for men and their partners to understand and address these issues as a part… Read More »
www.spinalcord.uab.edu/show.asp?durki=22405Woman’s Perspective Panel on Sexuality After SCI
Woman’s Perspective Panel on Sexuality After SCI.
event.netbriefings.com/event/mssci/Archives/webcast/Men’s Perspective Panel on Sexuality After SCI
Men’s Perspective Panel on Sexuality After SCI.
event.netbriefings.com/event/mssci/Archives/webcast/“The True Nature of Intimacy”
The True Nature of Intimacy by Gary Karp
event.netbriefings.com/event/mssci/Archives/webcast/Sexuality & Sexual Function
Sexuality & Sexual Function (59 minutes) The first part of this video explores psychological aspects of sexuality such as expressing sexuality, sexual adjustment, managing personal care issues, confronting issues with body image issues, and working through relationship issues. The second part explores physical aspects of sex following SCI for both men and women. This includes arousal,… Read More »
strweb.lhl.uab.edu/MSC001/Module13Sexual Function for Men with Spinal Cord Injury
Many men with spinal cord injury (SCI) experience changes in their sexual function and ability to biologically father children. In addition to these physical changes, most men also experience emotional issues that often affect their overall sexuality. It is very important for men and their partners to understand and address these issues as a part… Read More »
www.spinalcord.uab.edu/show.asp?durki=22405
General Websites
SPINALpedia
SPINALpedia.com is a free user-generated how-to video network to help adapt to life with a spinal cord injury by filtering videos to one’s specific degree of mobility and uniting the paralysis community through the power of experience. SPINALpedia.com has over 10,000 paralysis-related videos on SPINALpedia.com organized by injury level covering dozens of topics from the… Read More »
SPINALpedia.comAbleThrive
A one-stop platform for people with disabilities and their families to access curated and customized resources from around the world. Curated resources from people, organizations, companies, and hospitals all over the world to enable people with all abilities to thrive. Adapting to disability is hard enough, finding resources shouldn’t be.
AbleThrive.comCenter for Neuro Recovery
Center for Neuro Recovery is the nation’s leading functional movement exercise facility with the most state-of-the-art researched-backed equipment to date. Center for Neuro Recovery’s® Comprehensive Activity-based Strength Training (C.A.S.T.®) program helps individuals reach maximum levels of functionality, independence, and regain as much lost capability as possible through repetitive, activity-based strength training. Based in South Florida,… Read More »
www.centerforneurorecovery.com/disability-training/spinal-cord-injury-sci/Understand SCI
This website is designed to provide information about spinal cord injury to patients and their families.
UnderstandSCI.comDisabled dating with www.disabilitymatch.co.uk
Find genuine fun and intimacy with disabled singles. Specialist disabled dating to meet single adult men and women who share your disability,condition or life challenge within a friendly vibrant disabled community.
www.disabilitymatch.co.uk100 Quality Resources for Nursing and Medical Law
In the increasingly litigious climate that surrounds health care and medical treatment, anyone who works in a health-related field needs to be conscious of the laws and regulations that apply to them. Privacy regulations, treatment best practices, and the fine-grained laws pertaining to prescription medication and surgical procedures must all be followed to a tee,… Read More »
onlinefnp.com/nursing-lawDisabled and Productive
Our mission is to motivate people confined to a wheelchair to become more productive in their personal and professional lives. We believe that a productive disabled person is generally more content and has greater self-esteem. This site tells the stories of people who, by being productive and active, have been able to enjoy their lives… Read More »
www.disabledandproductive.comCareCure Community
SCI Cure – Therapies that restore function in spinal cord injury and related conditions. The Cure Forum contains comprehensive and up-to-date news on curing spinal cord injury. The Research Forums lists abstracts of the latest scientific articles on brain injury & stroke, neurodegeneration, multiple sclerosis, neuropathic pain, spinal cord injury, stem cells, and tranverse myelitis…. Read More »
sci.rutgers.eduJustCan.com
Where the disability community communicates. Links to online disability resources, products, services and support groups.
justcan.comExceptional Family Member Program
Exceptional family members program (Military program) Provides comprehensive and coordinated medical, education, housing, community support and personal services to families with special needs.
www.hoodmwr.com/acs/efmp.htmlDisabilityClaims.com
This site provides some common sense do’s and don’ts in an attempt to address the legal concerns of employees who have become or are about to become disabled. Among the topics addressed are “obtaining disability benefits,” “overturning a denial of disability benefits,” “saving your job,” “leaving your job,” “maximizing your pension,” and “retaining your health… Read More »
www.disabilityclaims.comMerck and The Merck Manuals
Home edition takes medical information, terms, diseases and presents it in readable format.
www.merck.com/mmhe/index.htmlPersonal Spinal Cord Injury Websites
This link is a page with links to personal SCI sites, many of which are very interesting and informative
www.sci-info-pages.com/personal.htmlSpine-health
Web site with short video clips of various types of spine surgeries, e.g., fusion, decompression, instrumentation.
www.spine-health.comSeven Counties Services
Web site from the Crisis and Information Center in Louisville listing resources in State of KY and southern Indiana. Resources identified include: AIDS testing and information, substance abuse and mental health issues, care-givers, specific diseases/disabilities, consumer fraud, disability benefits assistance, medical services, housing, career counseling, recreation, government assistance programs, support groups and much more.
www.sevencounties.orgFederal Information Resources
Federal Government Resource Information
www.spinalcord.org/resources/index.php?link=F&list=29The Spinal Cord Injury Zone
The Spinal Cord Injury Zone web site is a not-for-profit spinal cord injury educational knowledge base. The mission of The SCI Zone.com is to provide reliable News on Spinal Cord Injury related issues.
www.thescizone.comNew Injury Resources for Spinal Cord Injury and CNS
New injury resources for spinal injuries.
www.spinalcord.org/resources/index.php?link=N&list=60Spinal Cord Central
Joint website of the National Spinal Cord Injury Association and United Spinal Association.
www.spinalcordcentral.orgChildren’s Internet Resources
Spinal cord resources for children.
www.spinalcord.org/resources/index.php?link=C&list=16disABILITY Information and Resources
disABILITY Information and Resources
www.makoa.orgNational Spinal Cord Injury Association
Web site for the National Spinal Cord Injury Association which is a non profit advocacy group dedicated to education, support, research, and fund raising for related spinal cord injury issues. Categories include news updates, resources A-Z, legal issues/services, local resources by state, opportunities to participate in research studies and more.
www.spinalcord.orgChristopher Reeve Foundation
Official website for the Christopher Reeve Foundation. Be sure to see Paralysis Resource Center. Up to date information on research, resources, networking, health topics A-Z, and free lending library of educational materials including CD and DVD’s.
www.christopherreeve.orgSpinal Cord Injury Information Network
Web site for the Model Systems devoted to advancing the knowledge base related to spinal cord injury, rehabilitation and research. Information provided is comprehensive for many areas of SCI inquiry.
www.spinalcord.uab.edu
Aging With SCI
Aging With Spinal Cord Injury
By Rina Reyes, MD, Medical Director of the UW SCI Rehabilitation Program and Assistant Professor in the UW Department of Rehabilitation Medicine, and Ivan Molton, PhD, Rehabilitation Psychologist and Acting Assistant Professor in the UW Department of Rehabilitation Medicine. Presented on June 9, 2009 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/aging_6.09.asp
Adapting the Home
Adapting the Home
Adapting the Home. Spinal Cord Medicine Program, Frazier Rehab
www.jewishhospital.org/carecenters/Spinal/pdf/AdoptHome.pdf
Autonomic Dysreflexia
Medical Complications of SCI including Autonomic Dysreflexia
Medical Complications of SCI including Autonomic Dysreflexia. Spinal Cord Medicine Program, Frazier Rehab
www.jhsmh.org/LinkClick.aspx?fileticket=x4mxXiXvgCY%3d&tabid=332Cardiovascular Health
Cardiovascular Health (38 minutes) This video examines the signs, symptoms and general treatment options of potentially life-threatening conditions such as Autonomic Dysreflexia, Hypotension, and Deep Vein Thrombosis. Also discusses Self-Care and General recommendations on maintaining heart health, including emergency treatment responses. 58.2 mb download or watch on streaming real media.
strweb.lhl.uab.edu/MSC001/Module04/Autonomic Dysreflexia
By Janna Friedly, MD, Harborview Medical Center, assistant professor, Department of Rehabilitation Medicine, University of Washington. Presented on October 9, 2007 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/autonomic_dysreflexia.asp
Bladder Care
Management of Urinary Problems Caused by Spinal Cord Injury
By Stephen Burns, MD, Staff Physician, SCI Service, VA Puget Sound Health Care System, Associate Professor, Dept. of Rehabilitation Medicine, University of Washington. Presented on October 13, 2009 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/urinary_problems.aspBladder Management
Bladder Management (33 minutes) This video outlines the importance of bladder management on QOL. The types of bladder management programs and techniques are illustrated (Male and female anatomical models utilized to demonstrate proper techniques). Prevention and treatment of UTI Risks for stone formation are also discussed. 55.2 mb download or watch on streaming real media…. Read More »
http://strweb.lhl.uab.edu/MSC001/Module01Advances in Treatment of Urologic Conditions in the SCI Patient
By Elizabeth A. Miller, MD, Assistant Professor of Urology, University of Washington. Presented on November 14, 2006 at the University of Washington Medical Center
sci.washington.edu/info/forums/reports/urology.asp
Bone Health
Osteoporosis in SCI
By Jelena Svircev, MD, assistant professor, Department of Rehabilitation Medicine, University of Washington, VA Puget Sound Health Care System Presented on October 9, 2007 at the University of Washington Medical Center
sci.washington.edu/info/forums/reports/osteoporosis.aspBone Health
Bone Health (19 minutes) This video discusses aspects of Heterotopic Ossification (Classifications, Etiology, Diagnosis, Prevention and treatment options) and Osteoporosis (Initial bone loss after traumatic injury, Impact of aging, Impact of menopause, Prevention and treatment options). 58.2 mb download or watch on streaming real media.
strweb.lhl.uab.edu/MSC001/Module02/
Bowel Care
Bowel Management
Bowel Management (25 minutes) This video stresses management and its importance on QOL, predicting bowel movements, avoiding bowel accidents, bowel care procedures, anatomical model demonstrations. Impact of nutrition, water, medications on bowel management, and colostomy management. 37 mb download or watch on streaming real media.
http://strweb.lhl.uab.edu/MSC001/Module03/Bowel Management After Spinal Cord Injury
Belinda N. Coyle, RN, BSN, CRRN Spinal Cord Medicine Program Frazier Rehab & Neuroscience Center
www.jhsmh.org/LinkClick.aspx?fileticket=oaw3cxNnPlI%3d&tabid=332
Cardiovascular Health
Cardiovascular Health
Cardiovascular Health (38 minutes) This video examines the signs, symptoms and general treatment options of potentially life-threatening conditions such as Autonomic Dysreflexia, Hypotension, and Deep Vein Thrombosis. Also discusses self-care and general recommendations on maintaining heart health, including emergency treatment responses. 58.2 mb download or watch on streaming real media.
strweb.lhl.uab.edu/MSC001/Module04/
Emergency Preparedness
National Limb Loss Information Center Easy Read Materials
Emergency Preparedness
www.amputee-coalition.org/nllic_easyread_topic.asp?topic=Emergency PreparednessDisaster Resources for People with Disabilities
Disaster Resources for People with Disabilities, Disability-related Organizations & Emergency Managers & Planners
www.jik.com/disaster.htmlEmergency Evacuation Preparedness Guide
This guide, available in a variety of formats, focuses on developing emergency evacuation preparedness plans that take into account the needs of people with disabilities and activity limitations.
www.cdihp.org/products.html#evac_guideEmergency Preparedness and Individuals with Disabilities
The Department of Transportation is dedicated to ensuring the highest level of emergency preparedness in the event of a disaster. During an emergency, persons with disabilities may require (1) additional assistance with evacuation and (2) using transportation to get to a safe place.
www.dotcr.ost.dot.gov/asp/emergencyprep.aspEmergency Preparedness and People with Disabilities
Recognizing that individuals with disabilities should feel as safe and secure in their communities and work environments as individuals without disabilities, on July 22, 2004, President George W. Bush issued Executive Order 13347, Individuals with Disabilities in Emergency Preparedness.
www.dol.gov/odep/programs/emergency.htmEmergency Preparedness and Response
OSHA and its State Plan partners help set and implement national safety and health standards for emergency responders. Foremost among these standards is the Hazardous Waste Operations and Emergency Response standard of 29 CFR 1910.120(q).
www.osha.gov/SLTC/emergencypreparedness/Emergency Preparedness for People with Disabilities and Other Vulnerable Populations
The INCLUSIVE PREPAREDNESS CENTER (IPC) works to include everyone in emergency planning, response and recovery — particularly those more vulnerable to natural and man-made disasters.
www.inclusivepreparedness.org/Interagency Coordinating Council on Emergency Preparedness and Individuals with Disabilities
The Interagency Coordinating Council on Emergency Preparedness and Individuals with Disabilities was established to ensure that the federal government appropriately supports safety and security for individuals with disabilities in disaster situations.
www.dhs.gov/files/committees/editorial_0591.shtmPreparing for an emergency
This section of Disability.gov includes information that people with disabilities, their families, employers, and first-responders need to know about actions that should be taken before, during, and after emergencies.
www.disability.gov/emergency_preparednessWorst Case Scenarios
Emergency Preparedness for Everyone By Tracey Connelly, Emergency Preparedness Training Specialist for the City of Seattle. Presented on April 10, 2007 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/worst_case.asp
Home Modifications
Home Adaptations and Modifications after Spinal Cord Injury
By Pam Stockman, OT, Department of Rehabilitation Medicine, University of Washington. Presented on June 12, 2007 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/home_mod_07.asp
Living with SCI
FacingDisability For Families Facing Spinal Cord Injuries
Facing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts.
www.facingdisability.comMoving Forward After Spinal Cord Injury
This seven-minute video features Billy Price (right), whose life was upended 12 years ago when he sustained a C-6 complete spinal cord injury as a freshman in college. As he narrates his journey with quadriplegia —the traumatic early days, the challenges and achievements—we see the images of his present day life: driving to his full-time… Read More »
sci.washington.edu/info/video-moving_on.aspLife with SCI: A Group Discussion
Life with SCI: A Group Discussion (51 minutes) Adjustment to life with SCI is best understood by those who experience it. This video is an open discussion of 5 individuals with SCI and their experiences on short- and long-term adjustment-related issues such as healthy grief, education, Impact on relationships (self and partners), children, depression, and substance… Read More »
strweb.lhl.uab.edu/MSC001/Module08/Getting your life back after spinal cord injury: Finding meaning through volunteering, school and work
This was a five-part forum: a panel discussion of individuals with SCI talking about their experiences getting back to school or work after their spinal cord injuries, plus presentations by four different speakers. Presented on February 12, 2008 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/getting_life_back.aspFreeing Minds, Opening Hearts, Igniting Actions
Freeing Minds, Opening Hearts, Igniting Actions by Scott Chesney
event.netbriefings.com/event/mssci/Archives/webcast/Conversations about… living with spinal cord injury
Three men and one woman, all with longstanding spinal cord injuries, talk about their personal experiences living, surviving and thriving with their injuries. They share their initial reactions, adjustment, steps toward independence and thoughts about their injuries now. Presented on May 13, 2008 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/conversations.aspConversations…artists
Continuing our yearly theme of conversations with people who have spinal cord injuries, painter Brom Wikstrom and photographer Leslie Jewitt, discuss their art in the context of their SCIs. Presented on April 14, 2009 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/conversations-2.asp
Medications
From Ambien to Zanaflex: Making your Medications Work for You
By Debra Page, PharmD Clinical Pharmacist, Neurology & Rehabilitation Medicine, Harborview Medical Center, University of Washington. Presented on October 10, 2006 at the University of Washington Medical Center.
sci.washington.edu/info/forums/video/medications/SCIForum_files/Default.htm#nopreload=1
Osteoporosis
Bone Health
Bone Health (19 minutes) This video discusses aspects of Heterotopic Ossification (Classifications, Etiology, Diagnosis, Prevention and treatment options) and Osteoporosis (Initial bone loss after traumatic injury, Impact of aging, Impact of menopause, Prevention and treatment options). 58.2 mb download or watch on streaming real media.
strweb.lhl.uab.edu/MSC001/Module02/
Pain Management
Pain Management
Pain Management (34 minutes) This video stresses the importance on QOL. It covers Pain subtypes (Neuropathic, Musculoskeletal, Visceral) and offers general medical and psychosocial management techniques. 40.8 mb download or watch on streaming real media.
strweb.lhl.uab.edu/MSC001/Module11Using Hypnosis for Spinal Cord Injury Pain Management
By Shelley Wiechman Askay, PhD, clinical psychologist, Harborview Medical Center, assistant professor, Department of Rehabilitation Medicine, University of Washington. Presented on September 11, 2007 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/hypnosis_for_sci_pain.asp
Pressure Sores
Pressure Sores: Skin Care Prevention and Treatment
Part 1 of this 41 minute video reviews describes skin functions & risk factors for pressure sores, prevention of pressure sores such as proper seating, weight shifts, and nutrition. The impact of a pressure sore on QOL is explored. 56.2 mb download or watch on streaming real media. Part 2 is a 10 minute video… Read More »
http://strweb.lhl.uab.edu/MSC001/Module15
Ramp Building
Centenary United Methodist Church
This is a church in Shelbyville that has a ramp ministry. They provide ramps to people free of charge. There is an application process but you do not need to be a member of the church and while they are located in Shelby County, they do service surrounding counties (not sure about Jefferson).
shelbyvillemethodist.comHow to Build Wheelchair Ramps
How to Build Wheelchair Ramps for Homes is a manual of design and construction for modular wheelchair ramps.This manual includes information about modular ramps and long-tread low-riser steps to improve safe home accessibility.
www.wheelchairramp.org/
Research & Recovery
Stem Cells and Regeneration of the Spinal Cord: Practical Barriers and New Cell Technologies
By Philip J. Horner, PhD, associate professor, Department of Neurological Surgery and Institute for Stem Cell and Regenerative Medicine, University of Washington. Presented on May 12, 2009 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/stem_cells_and_sci_regeneration.aspReview of human trials of SCI and X-irradiation as well as Tempol, a nitroxide antioxidant, improves locomotor function in an animal model.
By Virany Huynh Hillard, MD, Assistant Professor of Neurological Surgery, University of Washington. Presented on March 13, 2007 at the University of Washington Medical Center
sci.washington.edu/info/forums/reports/research_hillard.aspRepairing the spinal cord from within: Regeneration potential of the adult stem cell
By Philip J. Horner, PhD, Assistant Professor, Department of Neurosurgery, University of Washington. Presented on April 11, 2006 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/repairing.asp
Respiratory Care
Respiratory Management
Respiratory Management (18 minutes) This video covers signs, symptoms and general treatment options of a potentially life-threatening conditions such as Atelectasis, Influenza, Pneumonia, Pulmonary Embolisms, Sleep apnea and Ventilator use. Discusses Self-Care issues such as smoking cessation, congestion, vaccinations (influenza and pneumonia), and weight management. 23.9 mb download or watch on streaming real media.
strweb.lhl.uab.edu/MSC001/Module12
Skin Care
Skin Care
Skin Care. Spinal Cord Medicine Program, Frazier Rehab
www.jhsmh.org/LinkClick.aspx?fileticket=FKeaU4WEi_E%3d&tabid=332Pressure Sores: Skin Care Prevention and Treatment
Part 1 of this 41 minute video reviews describes skin functions & risk factors for pressure sores, prevention of pressure sores such as proper seating, weight shifts, and nutrition. The impact of a pressure sore on QOL is explored. 56.2 mb download or watch on streaming real media. Part 2 is a 10 minute video… Read More »
http://strweb.lhl.uab.edu/MSC001/Module15
Spinal Surgery
spine-health.com
Web site with short video clips of various types of spine surgeries, e.g., fusion, decompression, instrumentation.
www.spine-health.com/
Spasticity
Spastic Hypertonia
Spastic Hypertonia (27 minutes) This video defines Spastic Hypertonia (aka spasticity), explaining the advantages vs disadvantages of spasticity, and general treatment options if desired. Also offers a general understanding of sensation and reflex. 40.7 mb download or watch on streaming real media.
strweb.lhl.uab.edu/MSC001/Module16
Wellness
Universal Fitness
By Cathy Warms, PhD, ARNP, CRRN, Department of Rehabilitation Medicine, University of Washington. Presented on May 8, 2007 at Harborview Medical Center.
sci.washington.edu/info/forums/reports/universal_fitness.aspRange of Motion Exercises
Range of Motion Exercises. Spinal Cord Medicine Program, Frazier Rehab
www.jhsmh.org/LinkClick.aspx?fileticket=pTxr0d869wY%3d&tabid=332Exercise, Sports and Recreation
Exercise, Sports and Recreation Presentation
event.netbriefings.com/event/mssci/Archives/webcast/Healthy Eating and Weight Management
Exercise & Nutrition Presentation
event.netbriefings.com/event/mssci/Archives/webcast/Cardiovascular Health
Cardiovascular Health (38 minutes) This video examines the signs, symptoms and general treatment options of potentially life-threatening conditions such as Autonomic Dysreflexia, Hypotension, and Deep Vein Thrombosis. Also discusses self-care and general recommendations on maintaining heart health, including emergency treatment responses. 58.2 mb download or watch on streaming real media.
strweb.lhl.uab.edu/MSC001/Module04/Bone Health
Bone Health (19 minutes) This video discusses aspects of Heterotopic Ossification (Classifications, Etiology, Diagnosis, Prevention and treatment options) and Osteoporosis (Initial bone loss after traumatic injury, Impact of aging, Impact of menopause, Prevention and treatment options). 58.2 mb download or watch on streaming real media.
strweb.lhl.uab.edu/MSC001/Module02/
Brain Injury
Brain Injury Resource Centera
A multidisciplinary team trained in traumatic brain injury. Consultants include: individuals with TBI, family members, learning specialists, nurses, paraprofessionals, lawyers, neuropsychologists, and physicians specializing in emergency medicine, and neurology.
/www.headinjury.comTraumatic Brain Injury Resource
Traumatic Brain Injury Resource, Treatment, Symptoms & News
www.traumatic-brain-injury-resource.com/Subtle Brain Injury
Far too much of the focus in the study of what the researchers always call “mild” brain injury, is trying to predict how serious a brain injury will become, based upon the way in which the patient interacts with medical professionals in the acute stage.
www.subtlebraininjury.com/Traumatic Brain Injury Central
TBI Central comprises the Web site of the Brain Injury Research Center (BIRC) at Mount Sinai. The BIRC has a sole focus on conducting research addressing the challenges of traumatic brain injury, or TBI
www.mssm.edu/research/centers/traumatic-brain-injury-centralDepartment of Defense and Veterans brain injury center
The mission of the Defense and Veterans Brain Injury Center (DVBIC) is to serve active duty military, their beneficiaries, and veterans with traumatic brain injuries (TBIs) through state-of-the-art clinical care, innovative clinical research initiatives and educational programs. DVBIC fulfills this mission through ongoing collaboration with military, VA and civilian health partners, local communities, families and… Read More »
www.dvbic.orgTraumatic Brain Injury guide
Nearly all of the survivors of a traumatic head injury and their families with whom I have worked have had one complaint: There is nothing written that explains head injury in clear, easy to understand language. Most say the available material is too medical or too difficult to read. The goal of this online book… Read More »
www.tbiguide.com/Traumatic Brain Injury Trust Fund
The TBI Benefit Management Program is committed to helping people with traumatic brain injury maintain the highest quality of life possible through its services and support.
kybraininjuryfund.org/Brain Injury Association of America
The Brain Injury Association of America provides information, support and education for those with brain injury and their families.
www.biausa.org/The Brain Injury Alliance of Kentucky
The Brain Injury Association of Kentucky provides information, support and education for those with brain injury and their families.
biak.us
Accessibility & Transportation
Magee Creates Accessible Travel Video with Southwest Airlines
Magee Rehabilitation Hospital partnered with Southwest Airlines to create this video of helpful tips for people with disabilities who wish to travel by plane while using a wheelchair. Special thanks to the Transportation Security Administration, Philadelphia International Airport, former Magee patient Josh Jones, and Flat World Media Productions. Share this video to encourage others to… Read More »
mageerehab.org/blog_post/magee-creates-accessible-travel-video-southwest-airlines/Learn how to protect your passengers in just 5 minutes!
Revised Guidelines from ANSI/RESNA for Safe Wheelchair Securement with Dr. Larry Schneider (UMTRI)
www.youtube.com/user/qstraintTransitioning into a wheelchair
Michael Rozaieski lives in Bardstown, KY and develops wheelchair electronics.
www.youtube.com/user/curtismarcomFreeWheel Wheelchair Attachment
The FreeWheel is what you need to easily traverse grass fields, snowy parking lots, enjoy hiking trails and safely glide down bumpy sidewalks and curbs. You no longer have to sit on the sidelines, always ask for help, or miss the fun.
www.gofreewheel.comRehabilitation Engineering Research Center on Wheelchair Transportation Safety (RERC WTS)
The mission of the RERC WTS is to build on the accomplishments of the past RERC to make measurable improvements in transportation safety, usability, and independence for people who remain seated in their wheelchairs when traveling in public, school, and private motor vehicles. The research and development portion of our program includes six project areas… Read More »
www.rercwts.orgKATS Network
The KATS Network, the Kentucky Assistive Technology Act Program, serves Kentucky residents of all ages with disabilities of all types, their families, employers and employment service providers, educators, health care and social service providers, and others seeking information about assistive technology (AT) and accessible information technology.
www.katsnet.org/New Directions Housing Corporation
New Directions has a simple purpose. We help people find, secure, and maintain their homes. To do this, we meet complex, challenging community problems, then we work with partners to overcome them. Problems like homelessness, poverty, crime, violence and urban blight can ensnare families, then whole neighborhoods. Solutions demand an entire community’s commitment to each… Read More »
www.ndhc.org/Center for Accessible Living
The Center for Accessible Living is Kentucky’s first Independent Living Center with offices located in Louisville and Murray and services spanning the entire state of Kentucky. The Center for Accessible Living (CAL), a private, non-profit 501 (c)(3) organization, is a disability resource center for people with disabilities, governed by people with disabilities. It operates on… Read More »
www.calky.org/Wheelchair Getaways
Wheelchair Getaways is committed to providing quality service to our customers We make renting a wheelchair or scooter accessible van hassle-free. Services provided to van rental customers include:
www.wheelchair-getaways.com/Cook & Reeves
Cook & Reeves Van Sales & Rentals is a family owned business started in 1976. We have always prided ourselves as offering a top quality vehicle and personal friendly service. We make it a point to treat everyone like we would like to be treated. We are a member of the Better Business Bureau with… Read More »
cookandreevesvans.com/Superior Van & Mobility
Superior Van & Mobility is celebrating its 34th year of serving the wheelchair van needs of customers in the Kentucky, Indiana and now Tennessee area.
www.superiorvan.com/Provide A Ride Transportation
Provide A Ride is a premier provider of medical, paratransit and other ground transportation services and is the leading custom-tailored, value focused transportation services provider in the industry. Provide A Ride has been proudly serving the community since 1989.
providearide.com/Able Care Inc.
Able Care is an insured wheelchair and ambulatory transportation carrier, serving the greater Louisville Metropolitan area. We operate under the authority of the Transportation Cabinet of the Commonwealth of Kentucky, Disabled Persons Certificate #1075. Our fleet is well maintained and our drivers are courteous, uniformed and well trained to provide the highest degree of professional… Read More »
ablecareinc.com/Indiana Disability Parking Placard
Information on how to obtain a disabled parking permit for the State of Indiana. Disability parking placards and disability license plates allow the holders to park in areas designated for disabled drivers.
myweb.in.gov/BMV/mybmvportal/InformationFor/InformationForDriversWithDisabilities.aspxTransit Authority of River City (TARC)
TARC3 ADA Paratransit Paratransit Service provides public transportation for people with disabilities who cannot use regular fixed-route bus service. The ADA states that TARC’s regular bus service should be the primary means of public transportation for everyone, including people with disabilities. Under the ADA, TARC3 will serve as a safety net for only those persons… Read More »
www.ridetarc.org/rider-information/tarc-3-paratransit.aspKentucky Disability Parking Placard
Information on how to obtain a disabled parking permit for use in the State of Kentucky
www.jeffersoncountyclerk.org/motor-vehicles/mvb-disabled.asp
Assistive Technology
Quality Indicators for Assistive Technology
This project, Quality Indicators for Assistive Technology in Post-Secondary education, offers tools and resources on quality implementation of assistive technology in the post-secondary educational environments.
QIAT-PS.orgNo Barriers USA
No Barriers is a powerful community of modern day pioneers who use the experience of nature to promote innovation, education and assistive technologies that create transformative life experiences and inspire people with challenges to live full and active lives.
www.nobarriersusa.orgWheelchair Junkie
Wheelchair Junkie
www.wheelchairjunkie.com/WheelchairNet
WheelchairNet is a community for people who have a common interest in (or in some cases a passion for) wheelchair technology and its improvement and successful application.
www.wheelchairnet.org/Center for Assistive Technology and Environmental Access
CATEA is a multidisciplinary engineering and design research center dedicated to enhancing the health, activity and participation of people with functional limitations through the application of assistive and universally designed technologies in real world environments, products and devices.
www.catea.gatech.edu/Apple Accessibility
Apple includes assistive technology in its products as standard features — at no additional cost. For example, iPhone, iPad, iPod and Mac OS X include screen magnification and VoiceOver, a screen-access technology, for the blind and visually impaired.
www.apple.com/au/accessibility/Microsoft Accessibility
Accessibility makes the computer easier to see, hear and use. Discover what’s possible with accessibility today and read inspiring profiles of accessibility in action.
www.microsoft.com/enable/Tennessee Technology Access Program
The Tennessee Technology Access Program (TTAP) is a statewide program designed to increase access to, and acquisition of, assistive technology devices and services.
www.tennessee.gov/humanserv/rehab/ttap.htmlAssistive Technology of Ohio
The Ohio Assistive Technology Project provides information on AT and also has lending libraries for AT devices.
www.atohio.org/enTECH
Enabling Technologies, called enTECH, is also part of the KATS network and is located at Spalding University’s Occupational Therapy Department. The center provides consultations, demonstrations, training and information about how microcomputer technology can assist people with disabilities.
www.spalding.edu/academics/entech/The Kentucky Assistive Technology Network (KATS)
The Kentucky Assistive Technology Network (KATS) is a statewide AT resource. The services it provides include: loan of assistive devices; low interest loans for purchasing AT; funding information and referrals; assessments and evaluations; and consultations on appropriate technologies.
www.katsnet.org/Broadened Horizons
Broadened Horizons develops and delivers unique, innovative solutions empowering those with upper extremity physical mobility limitations with tools to break down barriers and lead fulfilling lives as equals within society.
www.broadenedhorizons.com/The Wheelchair Ramp Project
How to Build Wheelchair Ramps for Homes is a manual of design and construction for modular wheelchair ramps.This manual includes information about modular ramps and long-tread low-riser steps to improve safe home accessibility.
www.wheelchairramp.org/National Center for Accessible Transportation (NCAT)
National Center for Accessible Transportation at Oregon State University conducts basic research on accessibility issues and developing practical, cost-effective improvements in transportation technologies, with the goal of making transportation more accessible for everyone.
ncat.oregonstate.edu/Driver Rehabilitation Specialist
ADED – The Association for Driver Rehabilitation Specialists was established in 1977 to support professionals working in the field of driver education / driver training and transportation equipment modifications for persons with disabilities through education and information dissemination. ADED, a nonprofit association, is the primary professional organization in this specialized area, and stands ready to… Read More »
www.driver-ed.org/i4a/pages/index.cfm?pageid=1University of Pittsburg Medical Center
University of Pittsburg Medical Center, conducts on far ranging research into health maintenance, e.g., joint preservation, skin integrity, equipment design for many patient populations including spinal cord injury.
www.rercsci.pitt.edu/Equal Access to Software and Information
Equal Access to Software and Information is a provider of online training on accessible information technology for person with disability.
people.rit.edu/easi/Job Accommodation Network
The mission of the Job Accommodation Network (JAN), a service of the US Department of Labor, is to facilitate the employment and retention of workers with disabilities by providing employers, employment providers, people with disabilities, their family members and other interested parties with information on job accommodations, entrepreneurship, and related subjects. JAN’s efforts are in… Read More »
askjan.org/Assistive Technology Industry Association
The Assistive Technology Industry Association’s mission is to serve as the collective voice of the Assistive Technology industry so that the best products and services are delivered to people with disabilities.
www.atia.org/i4a/pages/index.cfm?pageid=1Inclusive Design Research Centre
Adaptive Technology Resource Center wants to ensure that emerging information technology and practices are designed to include those with disabilities.
idrc.ocad.ca/Rehabilitation Engineering and Assistive Technology Society of North America
Rehabilitation Engineering and Assistive Technology Society of North America devoted to research, development, and application of assistive technology and rehabilitation engineering with helpful information for consumers and professionals.
resna.org/Apple – Universal Access
Information on assistive technology integrated into Apple computers/products.
www.apple.com/macosx/accessibility/
Legal Rights & Advocacy
The Americans with Disabilities Act Questions and Answers
The information in this booklet has been adapted from “The Americans with Disabilities Act Questions and Answers” document produced by the U.S. Equal Employment Opportunity Commission and U.S. Department of Justice, Civil Rights Division, October 2008 version. This publication was produced as a collaborative project by the ADA National Network, which is funded by the… Read More »
adata.org/sites/cms.adata.org/files/files/ADANN_FAQbooklet_final.pdfThe Social Security and Disability Resource Center
The Social Security and Disability Resource Center (SSDRC.com) is an informational website that provides answers to questions about how to apply for disability, how to appeal a claim in the event of a denial,how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants. The site’s author is… Read More »
ssdrc.comNational Youth Leadership Network
The National Youth Leadership Network – The National Voice for Young Leaders with Disabilities
www.nyln.orgAmerican Association of People with Disabilities
The American Association of People with Disabilities (AAPD), the country’s largest cross-disability membership organization, organizes the disability community to be a powerful voice for change – politically, economically, and socially. AAPD was founded in 1995 to help unite the diverse community of people with disabilities, including their family, friends and supporters, and to be a… Read More »
www.aapd.comAmericans with Disabilities Act
US Department of Justice – Americans with Disabilities Act
www.ada.govOffice on Disability
The Health and Human Services Office on Disability (OD) oversees the implementation and coordination of programs and policies that enhance the health and well-being of people with disabilities across all ages, races, and ethnicities. The Director of the Office advises the Secretary on disability policy issues. The Office plays an important role in breaking down… Read More »
www.hhs.gov/od/Council for Disability Rights
On national, state, and local levels, the Council for Disability Rights advances the rights of people with disabilities. The Council promotes public policy and legislation, public awareness through education, and provides information and referral services.
www.disabilityrights.orgADAPT
ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom.
www.adapt.org
Medical Information
HealthFinder.gov
When making decisions about your health, it’s important to know where to go to get the latest, most reliable information. healthfinder.gov has resources on a wide range of health topics selected from over 1,600 government and non-profit organizations to bring you the best, most reliable health information on the Internet.
www.healthfinder.govMedlinePlus
MedlinePlus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free. You can use MedlinePlus to learn about… Read More »
www.nlm.nih.govFreedom From Smoking Online
Freedom From Smoking® Online, or FFS Online, is a program specifically designed for adults, like you, who want to quit smoking. It’s an adaptation of the American Lung Association’s gold standard, group clinic that has helped thousands of smokers to quit for good.
www.ffsonline.orgFamily Health Centers in Louisville
Family Health Centers, Inc. (FHC) is a non-profit corporation, established by the Louisville-Jefferson County Board of Health in 1976, to assure that residents of the Louisville Metro area have access to high quality primary and preventive health services, regardless of ability-to-pay. Services are provided to more than 43,000 patients annually, through seven Family Health Centers… Read More »
www.fhclouisville.orgMerck and The Merck Manuals
Merck is committed to bringing out the best in medicine. As part of that effort, Merck provides all of The Merck Manuals as a service to the community. Home edition takes medical information, terms, diseases and presents it in readable format.
www.merck.com/mmhe/New York Online Access to Health
NOAH provides access to high quality consumer health information in English and Spanish. The NOAH volunteer editors do not write this information. Instead, librarians and health professionals in New York and beyond find, select, and organize full-text consumer health information that is current, relevant, accurate and unbiased.
www.noah-health.orgWebMD
Provides health information, tools for managing your health, and support to those who seek information.
www.webmd.comAARP
Information on health, prevention, insurance, current political/medical issues for those over 50.
www.aarp.org/health/FamilyDoctor.org
Medical information from the American Academy of Family Physicians
familydoctor.orgKidsHealth
Information about health, behavior and development, birth through teens. Sections for parents, children and teenagers.
kidshealth.orgeMedicineHealth.com
Medical topics A-Z, slide shows, medications and medical dictionary.
www.emedicinehealth.com
Multiple Sclerosis
National MS Society
The National MS Society is a collective of passionate individuals who want to do something about MS now—to move together toward a world free of multiple sclerosis. MS stops people from moving. We exist to make sure it doesn’t.
www.nationalmssociety.orgMultiple Sclerosis Foundation
The Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being. We offer programming and support to keep them self-sufficient and their homes safe, while our educational programs heighten public awareness and promote understanding about the disease.
www.msfacts.orgMultiple Sclerosis Association of America (MSAA)
The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization dedicated to enriching the quality of life for everyone affected by multiple sclerosis. MSAA provides ongoing support and direct services to these individuals with MS and the people close to them. MSAA also serves to promote greater understanding of the needs and challenges… Read More »
www.msassociation.orgAll About Multiple Sclerosis
All About Multiple Sclerosis aims to provide accurate and comprehensive medical information about multiple sclerosis (MS) written in plain English by people living with the disease and its symptoms. It contains a detailed description of multiple sclerosis, a large archive of news stories about MS, an MS encyclopedia and a large links section containing hundreds… Read More »
www.mult-sclerosis.org
Recreation & Travel
Magee Creates Accessible Travel Video with Southwest Airlines
Magee Rehabilitation Hospital partnered with Southwest Airlines to create this video of helpful tips for people with disabilities who wish to travel by plane while using a wheelchair. Special thanks to the Transportation Security Administration, Philadelphia International Airport, former Magee patient Josh Jones, and Flat World Media Productions. Share this video to encourage others to… Read More »
mageerehab.org/blog_post/magee-creates-accessible-travel-video-southwest-airlines/National Center on Physical Activity and Disability (NCPAD)
NCPAD is an information center concerned with physical activity and disability. Being physically active is good for every body. That’s a message you will find many times on this site. Being active is an important part of getting and staying healthy.
www.ncpad.orgABLE to Travel
ABLE to Travel provides knowledgeable travel agents that have dealt with all types of issues that a traveler using a wheelchair or who has limited mobility may encounter during his or her trip, including accessible transportation to and from the airport, stowage of wheelchairs or other mobility equipment on board an aircraft, accessible hotel accommodations,… Read More »
www.abletotravel.orgUSTA Wheelchair Tennis
In 1998 the United States Tennis Association assumed responsibility for wheelchair tennis in America from the National Foundation for Wheelchair Tennis. Since then the USTA has become the first National Governing Body of both Olympic and Paralympic tennis governing Paralympics, Para Pan Am Games, and World Team Cup.
www.usta.com/Play-Tennis/Wheelchair-Tennis/Wheelchair/National Wheelchair Softball Association
Wheelchair softball was born 30 years ago in the Midwest by a few individuals with spinal cord injuries and lower extremity impairments, who still wanted to enjoy America’s greatest pastime. These individuals needed to develop a way of playing without the full use of their legs that would allow easy maneuverability in a wheelchair and… Read More »
www.wheelchairsoftball.orgUS Quad Rugby Association
The United States Quad Rugby Association exists to provide opportunity, support, and structure for competitive wheelchair rugby to people with disabilities. We are here to help people get involved in the fastest growing wheelchair sport in the world.
www.quadrugby.comNational Wheelchair Basketball Association (NWBA)
The National Wheelchair Basketball Association (NWBA) is comprised of over 200 basketball teams across twenty-two conferences and seven divisions. The NWBA was founded in 1948, and today consists of men’s, women’s, intercollegiate, and youth teams throughout the United States of America and Canada.
www.nwba.orgWheelchair Sports, USA
The mission of Wheelchair Sports, USA is to provide sports and recreation opportunities for people with physical and visual disabilities by facilitating, advocating, and developing a national community-based outreach program, providing resources and education, conducting regional and national competitions, and providing access to international competitions.
www.wsusa.orgU.S. Paralympic Team
U.S. Paralympics, a division of the U.S. Olympic Committee, is dedicated to becoming the world leader in the Paralympic sports movement and promoting excellence in the lives of people with physical disabilities.
usparalympics.orgInternational Paralympic Committee
This is the official website of the International Paralympic Committee.
www.paralympic.orgDisabled Sports USA
A national nonprofit, 501(c)(3), organization established in 1967 by disabled Vietnam veterans to serve the war injured. DS/USA now offers nationwide sports rehabilitation programs to anyone with a permanent disability. Activities include winter skiing, water sports, summer and winter competitions, fitness and special sports events. Participants include those with visual impairments, amputations, spinal cord injury,… Read More »
www.dsusa.orgAmerican Association of Adapted Sports Programs
AAASP employs athletics through a system called the adaptedSPORTS® Model. This award–winning model is an interscholastic structure of multiple sports seasons that parallels the traditional interscholastic athletic system and supports the concept that school–based sports are a vital part of the education process and the educational goals of students.
www.adaptedsports.orgNortheast Passage
Northeast Passage, founded in 1990, is a nationally recognized leader in the provision of innovative therapeutic recreation services. Northeast Passage delivers disability-related health promotion and adapted sports programs throughout New England. Northeast Passage is a program of the University of New Hampshire’s College of Health and Human Services and is an affiliate of Disabled Sports… Read More »
www.nepassage.orgSociety for Accessible Travel & Hospitality (SATH)
The Society for Accessible Travel & Hospitality (SATH), founded in 1976, is an educational nonprofit membership organization whose mission is to raise awareness of the needs of all travelers with disabilities, remove physical and attitudinal barriers to free access and expand travel opportunities in the United States and abroad. Members include travel professionals, consumers with… Read More »
www.sath.orgGimp on the Go: Disabilities Travel Publication
Gimp on the Go: The Internet’s Premier Disabilities Travel Publication
www.gimponthego.comAccessible Journeys
Our accessible lifestyle vacations© harmonize our clients’ abilities with the resources needed for slow walkers and wheelchair travelers to visit the living classrooms of culture and history around the globe.
www.disabilitytravel.comNeighborhood House, Louisville, KY
Neighborhood House is a community-based organization that provides individuals with opportunities to enhance the quality of their lives. We are located in Portland, one of Louisville, Kentucky’s most economically disadvantaged communities. Neighborhood House provides programs and services for all ages, focusing on educational enhancement, civic responsibilities, cultural enrichment health promotions, social skills development, employment opportunity… Read More »
www.nhky.orgJewish Community Center of Louisville
Membership to the Jewish Community Center of Louisville provides everything from recreation to inspiration for you and your family. Enjoy plenty of opportunities to flex your muscles, grow your mind, explore the arts, make new friends and so much more.
www.jccoflouisville.orgEndeavour
Adventure travel for people with disabilities
www.endeavour-safaris.comTravel Agency for People with Disabilities
We arrange vacations for individuals, groups, clubs, seniors, and people with disabilities (including those traveling with an assistance dog). We’re happy to provide expertise and the benefits of our experiences in selecting a specific cruise ship or itinerary for your particular needs and desires.
www.accessible-travel.net
Research & SCI
Rehabilitation Engineering Research Center (RERC) on Spinal Cord Injury
A research center at the University of Pittsburgh dedicated to researching innovative technologies designed to help people with spinal cord injuries.
www.rercsci.pitt.eduCoalition for the Advancement of Medical Research
The Coalition for the Advancement of Medical Research (CAMR) is the nation’s leading bipartisan pro-cures coalition. Comprised of 100 nationally recognized patient organizations, universities, scientific societies, and foundations, CAMR’s advocacy and education outreach focuses on research toward developing better treatments and cures for individuals with life-threatening illnesses and disorders.
www.camradvocacy.orgInternational Campaign for Cures of Spinal Cord Injury Paralysis
The International Campaign for Cures of Spinal Cord Injury Paralysis (ICCP) is a body of affiliate non-profit organizations, working to fund research into cures for paralysis caused by spinal cord injury. The ICCP coalition mission is “to expedite the discovery of cures for Spinal Cord Injury Paralysis”.
www.campaignforcure.org/iccp/ClinicalTrials.gov – Spinal Cord Injury
ClinicalTrials.gov is a registry of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from International Campaign for Cures of Spinal Cord… Read More »
www.clinicaltrials.gov/ct2/results?term=spinal+cord+injuryReeve-Irvine Research Center
The mission of the Reeve-Irvine Research Center is to find new treatments for spinal cord injury through the collaborative research and educational efforts of prominent scientists and clinicians both at the University of California, Irvine and around the world.
www.reeve.uci.eduThe Miami Project to Cure Paralysis
In 1985, Barth A. Green, M.D. and NFL Hall of Fame linebacker Nick Buoniconti helped found The Miami Project to Cure Paralysis after Nick’s son, Marc, sustained a spinal cord injury during a college football game. Today, The Miami Project is the world’s most comprehensive spinal cord injury research center, housed in the Lois Pope… Read More »
www.miamiproject.miami.eduHuman Locomotion Research Center
The Human Locomotion Research Center’s team is headed by Susan J. Harkema, Ph.D., a leading researcher in the field of neurological rehabilitation. She currently holds the positions of Associate Professor in the Department of Neurological Surgery at U of L, Rehabilitation Research Director at the Kentucky Spinal Cord Injury Research Center and Director of Research… Read More »
www.jhsmh.org/HealthServices/RehabServicesFrazierRehab/Specialties/HumanLocomotionResearchCenter.aspx
Self Inventories
SCI Health Assessment
Wellness and Risk Assessment An on-line wellness assessment from the Model SCI Care System at Craig Hospital for individuals with spinal cord injury to take to review their lifestyle behaviors. This then provides recommendations for healthy choices for self-care in each of the following areas: Smoking, Physical Activity, Stress Management, Safety, Alcohol/Drug Use, Self-Care Exams.
www.craighospital.org/SCI/sciHealthAssessment.aspDrug Abuse Screening Test – DAST
The Drug Abuse Screening Test, or DAST is one of the two standard screening tests that doctors and counselors use to determine if an individual is a drug addict or suffering from drug abuse. The DAST screening test is also a self-test that can help reveal symptoms of drug addiction.
www.schickshadel.com/addiction/drug_quiz.phpDepression self-assessment
Provided by the Mayo Clinic, this inventory is for self assessment for depression, depressive symptoms and suggestions when to consider treatment. Information is also provided about any types of emotional illnesses/conditions/treatments.
www.mayoclinic.com/health/depression/MH00103_DShort Michigan Alcohol Screening Test
The Short Michigan Alcohol Screening Test, or SMAST, is aimed at identifying individuals with drinking problems. SMAST is one of two standard screening tests that doctors and counselors use to determine if an individual suffers from alcohol addiction.
www.schickshadel.com/addiction/alcohol_quiz.phpAlcoholScreening.org
Is the way or amount I drink harming my health? Should I cut down on my drinking? Answering these questions will take only a few minutes, and will give you personalized results based on your age, gender and drinking patterns.
www.alcoholscreening.org
Service & Therapy Animals
Paw Nation
Most of us are familiar with seeing eye dogs who help guide the blind. But an amazing array of animals are also helping people in
www.pawnation.com/2009/05/21/service-animals-pets-helping-people/Delta Society for Service and Therapy Animals
Delta Society is a non-profit organization that brings individuals together who share a common passion – a love of animals and people. We are committed to making a difference within our local communities and across the globe. Throughout this website, you’ll have the opportunity to meet many of our members. If you are already involved… Read More »
deltasociety.org
General Webcast
The Christopher & Dana Reeve Foundation Web Casts
The Christopher & Dana Reeve Foundation has an extensive library of On Line videos on many topics including: Dr. Spine, Success Stories, Innovations, Prevention, Resources, Sport and Recreation, Accessibility to the road, Quality of Life, Sex on Wheels, Multicultural Outreach and more.
www.christopherreeve.org/site/lookup.asp?c=ddJFKRNoFiG&b=5848659
Nutrition
New England Journal of Medicine
New England Journal of Medicine
www.nlm.nih.govAmerican Journal of Clinical Nutrition
The American Society for Nutrition (>3100 members) is the premier research society dedicated to improving the quality of life through the science of nutrition.
www.ajcn.orgAnnals of Nutrition and Metabolism
An Official Journal of IUNS and FENS
www.karger.com/journals/anm_jhAmerican Society for Nutrition (ASN)
The American Society for Nutrition (ASN) is a non-profit organization dedicated to bringing together the world’s top researchers, clinical nutritionists and industry to advance our knowledge and application of nutrition for the sake of humans and animals. Our focus ranges from the most critical details of research and application to the broadest applications in society,… Read More »
www.nutrition.orgNational Institutes of Health (NIH)
The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the nation’s medical research agency—making important medical discoveries that improve health and save lives.
www.nih.govCenter for Food Safety and Applied Nutrition
The Center for Food Safety and Applied Nutrition, known as CFSAN, is one of six product-oriented centers, in addition to a nationwide field force, that carry out the mission of the Food and Drug Administration (FDA). FDA is a scientific regulatory agency responsible for the safety of the nation’s domestically produced and imported foods, cosmetics,… Read More »
www.fda.govCenters for Disease Control and Prevention
CDC Centers for Disease Control and Prevention – Your Online Source for Credible Health Information
www.cdc.govCenter for Disease Control-Wonder
CDC WONDER furthers CDC’s mission of health promotion and disease prevention by speeding and simplifying access to public health information for state and local health departments, the Public Health Service, and the academic public health community. CDC WONDER is valuable in public health research, decision making, priority setting, program evaluation, and resource allocation.
wonder.cdc.govNational Agricultural Library (NAL)
The National Agricultural Library (NAL): advancing access to global information for agriculture
www.nal.usda.govFederation of American Societies for Experimental Biology
Founded in 1912, the Federation of American Societies for Experimental Biology (FASEB) was originally created by three independent scientific organizations to provide a forum in which to hold educational meetings, develop publications, and disseminate biological research results. What started as a small group of dedicated scientists has grown to be the nation’s largest coalition of… Read More »
www.faseb.orgUnited States Department of Agriculture
We want to be recognized as a dynamic organization that is able to efficiently provide the integrated program delivery needed to lead a rapidly evolving food and agriculture system.
www.usda.govCooking Light
Cooking Light is a long-established health, nutrition, and fitness authority that inspires readers to eat smart, be fit, and live well. A leader in translating cutting-edge nutrition research into recipes and guidance for the home cook, we offer the tools you need to make better choices for a healthy lifestyle. Each recipe is tested by… Read More »
www.cookinglight.comDietician.com
Ask the Dietician
www.dietician.comNutrition Guidelines for Individuals with SCI
By Vickeri Barton, RD, CD, Dietitian, Harborview Medical Center. Presented on June 13, 2006 at the University of Washington Medical Center.
sci.washington.edu/info/forums/video/nutrition/Nutrition_files/fdeflt.htm#nopreload=1Nutrition and Recovery
Nutrition and Recovery. Spinal Cord Medicine Program, Frazier Rehab
http://www.jhsmh.org/LinkClick.aspx?fileticket=IPLNffuyJOg%3d&tabid=332Healthy Eating and Weight Management
Exercise & Nutrition Presentation
event.netbriefings.com/event/mssci/Archives/webcast/American Dietetic Association
For the public, for ADA members, for students and for health professionals—the American Dietetic Association is your source for trustworthy, science-based food and nutrition information. The world’s largest organization of food and nutrition professionals, ADA is committed to improving the nation’s health and advancing the profession of dietetics through research, education and advocacy.” alt=”For the… Read More »
www.eatright.orgAmerican Heart Association
Our mission is to build healthier lives, free of cardiovascular diseases and stroke. That single purpose drives all we do. The need for our work is beyond question.
www.heart.org/HEARTORG/
Spinal Cord Injury
Understanding Spinal Cord Impairments and Functional Goals
Understanding Spinal Cord Impairments and Functional Goals (26 minutes) This video offers a basic understanding of the normal function of the spinal cord and the impact of impairment at different types and levels of injury. In addition, functional goals are addressed for levels of impairment. 39.1 mb download or watch now in streaming Real Media.
strweb.lhl.uab.edu/MSC001/Module17
Sexual Functioning
“Sexability”
Is there sex after spinal cord injury? Kelly Arbor of Babeland discusses how sexuality and intimacy are available to everyone, regardless of disability. Presented on February 10, 2009 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/sexability.asp
Local Organizations
Michael Feger Paralysis Foundation
The Michael Feger Paralysis Foundation Inc. provides assistance and educational materials to people effected by spinal cord injury and disease.
michaelfegerparalysisfoundation.orgTodd Crawford Foundation to Cure Paralysis
The Todd Crawford Foundation was started with the purpose of raising money and awareness for spinal cord injury (SCI) research. We have raised over $60,000 with help from our supporters.
toddcrawfordfoundation.orgFriends For Michael
To keep Michael’s spirit alive, Friends For Michael will continue it’s efforts to help find a cure for spinal cord injury/disease, help others live a quality of life, provide spinal cord injury prevention and awareness, keep the importance of research in the fore front of the public and help others succeed in what they want… Read More »
www.friendsformichael.orgDerby City Area Spinal Cord Injury Association
Derby City Area Spinal Cord Injury Association, the Louisville Kentucky Chapter of the (N.S.C.I.A.) National Spinal Cord Injury Association. Derby City Area Spinal Cord Injury Association is a organization for individuals with spinal cord injuries, their families, and health professionals across Kentucky. Founded in 1984 as a Charter Member of the N.S.C.I.A., it was incorporated… Read More »
www.derbycityspinalcord.orgFriends of Frazier
Friends of Frazier is here to inform you of the latest happenings at Frazier Rehab including medical advancements, help you connect with others, encourage you to remain inspired on your path of healing, and provide opportunities to give back.
www.friendsoffrazier.org
Health Information
ACA Disability Navigator Health Insurance Enrollment Resources
National Disability Navigator Resource Collaborative (NDNRC) provides cross-disability information and support to Navigators and other enrollment specialists to ensure people with disabilities receive accurate information when selecting and enrolling in insurance through the Affordable Care Act Marketplaces.
www.nationaldisabilitynavigator.org/PressureUlcer.net
PressureUlcer.net was created to act as a reliable resource for members of the public wishing to educate themselves about pressure ulcers, their types, causes, treatment, prevention, and the remedies available to those suffering.
www.pressureulcer.net/
Other Illnesses/Disabilities
Mesothelioma Center – Vital Services for Cancer Patients & Families
The Mesothelioma Center offers the most comprehensive and current information on asbestos exposure and mesothelioma.
www.asbestos.com/
Social Security Disability
Benefit Calculators from the Social Security Administration
A variety of calculators to help you plan for the future. Which calculator you choose depends on what you want to do. The best way to start planning for your future is by creating a my Social Security account online. With my Social Security, you can verify your earnings, get your Social Security Statement, and… Read More »
www.ssa.gov/planners/benefitcalculators.htmlSocial Security Ticket to Work Program
Choosing to work can change your life. If you have a disability and want to work, Social Security’s Ticket to Work program may be right for you. We will connect you with the right people to help you explore your options, prepare for work, or gain experience while staying in control of your benefit choices…. Read More »
www.chooseworkttw.netNavigating the System: Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI)
By Peter McKee, Attorney, Douglas, Drachler & McKee, LLP Presented on November 13, 2007 at the University of Washington Medical Center.
sci.washington.edu/info/forums/reports/ssdi&ssi.asp